A large part of our work is to promote the importance of connections with communities, which forms part of our mission to support individuals to live independent and fulfilling lives.
The importance of community and its positive impact on wellbeing was clear to our founder Reverend Henry Hawkins when he started our charity in 1879. Reverend Hawkins worked tirelessly with women who had been committed to asylums, supporting them in reintegrating back into society on their release. Reverend Hawkins recognised that a close and supportive community was a major protective factor and helped people avoid being committed again.
During Mental Health Awareness Week, we want to share insights and stories from people who use our services as well as our staff and volunteers, on the different ways community and connections have been beneficial to mental health and wellbeing. These could include factors like housing, employment and volunteering which are key foundations that if people haven’t had previously, can be transformative and help them to be an active part of a community. They can also provide purpose and independence. Making connections through group activities, whether it is sport or a book club for example, can bring joy to all those taking part and help establish connections and combat isolation whilst also encouraging people to become active. Community groups also allow people to meet others who have similar backgrounds or beliefs, meaning members can identify with and share lived experiences and find belonging and inclusion.
Overall, we will be led by the people who use our services and the ways they feel community has been important to them. We are excited to see the different directions this takes us and to be able to showcase all the ways community has helped them.
The government has recently released a series of new welfare and employment policies. This includes the reforms to the Work Capability Assessment (WCA), the Back to Work Plan, alongside other changes announced in the 2023 Autumn Statement. We strongly oppose the government’s approach to getting people back into work and the potential loss of financial support for many people living with mental illness who rely on benefits. We know that these announcements have been distressing and unclear for many people, so Julia (pictured) from our Policy Team has written this blog to explain what will happen, what might happen, and some of our hopes for the future.
Welfare keywords
There are some complicated words and acronyms throughout this blog. Here’s an explainer of what some of those terms mean.
Work Capability Assessment (WCA)
The WCA is a test that the DWP uses to assess people’s capability for work or work-related activities. People are tested on whether they can complete certain activities and need specific amount of points for different outcomes.
Fit for Work (FFW)
Fit for Work (FFW) is one of the three outcomes to a WCA. It means you get no entitlement to extra amounts of Universal Credit and/or Employment Support Allowance, and you need to look for work.
Limited Capability for Work (LCW)
Limited Capability for Work (LCW) is one of the three outcomes to a WCA. It means you cannot work now, but are deemed as able to engage with work preparation (i.e. cv writing, courses, etc). You need to complete “Work prep” in order to receive your UC or ESA in full, and if you do not fulfill it, then you can be sanctioned. People in this group also do not receive the extra amounts of UC/ESA.
Limited Capability for Work Related Activities (LCWRA)
Limited Capability for Work Related Activities (LCWRA) is one of the outcomes of the WCA. It means you do not have to look for work nor prepare for work, and you receive a higher rate of UC/ESA.
LCWRA mobilising activity
This activity assesses the ability to move around and is satisfied if a claimant cannot move more than 50 metres safely and repeatedly on level ground without needing to stop, taking account of the use of aids such as a manual wheelchair, crutches or walking stick which are normally or could reasonably be used.
LCW Getting About Descriptor
This activity assesses the ability to travel without support from another person as a result of disorientation; or of agoraphobia causing fear of travelling unaccompanied by another person. Specified places with which a person is familiar include locations in their local area such as the GP surgery, dentist, bank, post office, local shops etc.
LCWRA Substantial Risk criteria
A claimant can be treated as having limited capability for work-related activity (LCWRA) if, by reason of their health condition or disability, there would be a substantial risk to the health of the claimant or others were the claimant found not to have LCWRA. The provision can only come into play if a claimant has been found to have LCW but then fails to satisfy any of the LCWRA descriptors.
Open-ended sanction
Claimants receive their benefit payments on the condition that they fulfil their claimant commitments. Claimant commitments are rules or actions that DWP expect claimants to fulfil, which can be anything from seeing their work coach x times per week to applying for jobs. A sanction is an action by the DWP, when they reduce or stop someone’s benefit payment for a period of time. People get sanctioned when they do not fulfil their claimant commitments. An open-ended benefit sanction is a sanction that applies for as long as the claimant does not fulfil their claimant commitment (i.e., attending specific meetings or interviews).
Standard allowance
Standard allowance is determined by the certain characteristics of the household. Single claimants or joint claimants, under or over the age of 25, will receive different amounts but they are the same for each group.
The LCWRA element is an additional money that specific benefit claimants receive, when they get found as having LCWRA after their WCA.
What’s changing?
Work Capability Assessment
To begin with, the Department for Work and Pensions (DWP) have decided to reform specific aspects of the Work Capability Assessment (WCA). They have justified the changes by saying that certain barriers to work have diminished since homeworking has become more common. However, homeworking is not as common or accessible as they have implied that it is, and homeworking still poses barriers for many people living with severe mental illness. If someone is too unwell for work in general, then many will likely be too unwell for homeworking as well. People who are seriously unwell need holistic support that includes a compassionate benefits system – not unnecessary pressure to work.
Here are the key points to know about the changes to the WCA and please note that any changes to the WCA assessment itself will not happen before 2025.
The DWP will be introducing a “Chance to Work Guarantee” to existing Limited Capability for Work Related Activities (LCWRA) claimants, which allows people to work without it affecting their LCWRA status and benefits entitlement. The DWP also said that they will not be reassessing people currently with LCWRA status, unless the claimant self-reports a change of circumstances to the DWP or if they are suspected of fraud. We support the commitment to stop reassessments for people currently with LCWRA status, because we know that it can cause severe distress and uncertainty for people who are seriously unwell. However, this should apply to anyone with LCWRA status – now and in the future.
The LCWRA mobilising activity will be removed from the assessment, as they state that homeworking can help people overcome this barrier to work. We do not agree with this approach. Many people living with mental illness experience difficulties with this due to extreme fatigue as an example, and homeworking would not improve this for many people. In addition, the points awarded from the Limited Capability for Work (LCW) Getting About descriptor will be reduced. We do not agree that this should be reduced as it could make it more difficult for people to achieve the points they need to show that they cannot engage with work-related activities due to ill-health.
The LCWRA Substantial Risk criteria will be amended to specify the circumstances and serious mental health conditions for which LCWRA risk should apply. The DWP have said that they will work with clinicians to work out this criteria and process. We are concerned about this change as the criteria should not become narrower, however this could be an opportunity for the DWP to include all factors related to severe mental illness.
While we oppose some changes and support some in principle, we know that the WCA is fundamentally flawed and should not be partly reformed. The whole approach to assessing work capability needs to be fully re-designed and all reforms should be led by the voice of lived experience.
Back to Work Plan
The government is focussed on getting people back into work, particularly people living with long-term sickness or disability. Here are some of the main points from the plan.
The DWP will start by trialling Additional Jobcentre Support on people who continue to be out of work or earning low wages, after 7 weeks of Universal Credit (UC). This means that more people will have to engage with work coaches after 7 weeks of receiving UC.
They are also extending and expanding the Restart programme, which will deliver intensive employment support for people who have been on UC for 6 months or more.
If UC claimants continue to be out of work after 12 months in the Restart programme, they will have to participate in a “claimant review point”. This essentially means that a work coach will decide what other conditions or employment pathways (i.e., mandatory work placements) the claimant must comply with and fulfil. If the claimant refuses the outcome of the claimant review point, then their UC claim will be closed. This measure will be slowly rolled out from 2024 on. We fully oppose this measure as sanctions not only are counterproductive with getting people into and staying in work, but they also cause severe distress to claimants living with severe mental illness.
The DWP will also close claimants’ UC claims if they have been on an open-ended sanction for more than 6 months, thereby losing access to other benefits like free NHS prescriptions or legal aid. Please note: this action will only affect people who only receive the standard allowance of UC, not people who receive additional elements such as the Limited Capability for Work-Related Activity (LCWRA) element. For example, if you are single and over 25 years old, your monthly standard allowance is £368.74 per month, and if you have LCWRA, then you receive an additional £390.06 per month. In this example, the DWP would not close your UC claim if you have been on an open-ended sanction for more than 6 months. However, if you only received the UC standard allowance, but none of the elements, then they could close your UC claim if you were on an open-ended sanction for over 6 months.
The DWP will also begin tracking benefit claimants’ attendance to job fairs and interviews by using digital tools, which can affect someone’s claimant commitments and subject them to sanctions.
Some people cannot work because they are seriously unwell and should be able to rely on our benefits system. There are also some people who feel well enough for work and want to work, and they should be offered the best quality support that will help them reach their goal. This is why we were happy to hear that Individual Placement and Support (IPS) services will be expanded to support an additional 100,000 people.
IPS is a helpful employment support service scheme that helps people living with severe mental illness find quality, paid work. The service can be provided by local authorities, the NHS, charities like us, and others. It is completely voluntary, meaning you do not have to use the service if you don’t want to. However, if you want some personalised support, then IPS can help you find a job that best suits you and that you would enjoy. They also provide support to service-users once they are in work, as well as offer support to the employer to ensure that they know how to best support their new employee.
We feel that amongst the difficult news regarding the benefits system, this was one of the announcements that provided some hope. While it does not compensate for the stress caused by the changes in the benefits system, it is good to hear that more people will have access to this type of service if they are interested and ready.
Benefit rates – what’s changed?
We were also relieved to hear that working-age benefits will increase by 6.7% starting on 8 April 2024, to be in line with inflation. We hope that this can provide some relief during the cost-of-living crisis. The table below shows how much benefits like UC and Personal Independence Payment will be starting in April 2024. While we were relieved to hear that benefits are going to increase, we know that it won’t be enough to help many people pay for their essentials like food, utilities, and housing. This is why the government should introduce an Essentials Guarantee in our benefits system, which would ensure that benefit levels are continuously sufficient to help people to pay for their essentials. We will continue to fight for this and support the Joseph Rowntree Foundation and The Trussell Trust Joint Campaign – Guarantee Our Essentials.
Universal Credit – Standard Allowance
Household
Current monthly standard allowance
New monthly standard allowance
Single and under 25
£292.11
£311.68
Single and 25 or over
£368.74
£393.46
Live with your partner and both under 25
£458.51 (for you both)
£489.23 (for you both)
Live with your partner and either of you are 25 or over
£578.82 (for you both)
£617.60 (for you both)
Universal Credit – LCWRA element example
Current monthly rate
New monthly standard allowance
£390.06
£416.19
Personal Independence Payment
Daily Living Part
Current weekly rate
New weekly rate
Lower weekly rate
£68.10
£72.66
Higher weekly rate
£101.75
£108.57
Mobility part
Current weekly rate
New weekly rate
Lower weekly rate
£26.90
£28.70
Higher weekly rate
£71.00
£75.76
Final thoughts
We understand that these changes can be complex and upsetting. Please remember that many of the changes won’t be immediate and we will continue to work towards a better and more compassionate benefits system. If you feel need further information or support regarding money and benefits, please check out our Mental Health and Money Advice service.
Created by a member of the Bipolar UK community, the charity has launched an expert-approved Mood Tracker app to record daily mood, medications, emotions and sleep.
Benefits:
track mood and sleep patterns over weeks and months
spot any early warning signs of a relapse
collect data to share with family and healthcare teams
see how factors such as sleep, and daily activities affect mood
understand whether medication is effective
App developer Andrew Thomas says:
When I was 50, I was diagnosed with bipolar type 2. The psychiatrist referred me to the Mood Scale on the Bipolar UK website and gave me some sheets to fill in to record my mood. I was annotating all over them and had the idea to create an app. I contacted Bipolar UK with a prototype and we worked on it together for over two years. I’m really proud of how it’s turned out. I hope it will help other people with bipolar in the same way that it’s helped me.
Download the Bipolar UK Mood Tracker app on a phone or tablet via the Apple Store or GooglePlay. It takes 10 minutes to set up and two minutes a day to fill in.
For more details and expert quotes, please contact Sarah Owen on 07759 232028 or at sowen@bipolaruk.org.
